EMEA Patient Advocacy Manager (Patient Partnership)

Kyowa Kirin International plc (Düsseldorf NW, Deutschland) Vor 5 Stunden veröffentlicht



Everything we do at KKI, is rooted in the idea of leaping forward to make people smile. We are committed to innovation, for the benefit of the patients who count on us to support them. From medicines for rare and underserved diseases, to the support families need when facing a life-changing diagnosis – our team is proud of all we deliver, but also humble in knowing how much more needs to be done. By listening to patient stories, we gain a better understanding of the obstacles patients and their families face – so we can work to better meet their unique needs. The real proof of our impact is in the smiles we see on patients’ faces, when we have helped answer a need, or improved their well-being through our work. While the journey is not easy, it is one that is filled with purpose.

EMEA Patient Advocacy Manager (Patient Partnership)

Kyowa Kirin GmbH Dusseldorf


At Kyowa Kirin International, everything we do comes back to our patients. We are constantly leaping forward to make our patients smile, and we now have an exciting new position which will enable us to work closely with patient groups and help us continue to integrate our patient voices into our product strategy and throughout our business.

Working in our Rare Disease business unit, in a newly formed Patient Partnership team, you will identify opportunities to broaden our patient engagement, from product launch and beyond, generating patient insights and feeding back to the business to ensure we continue to build strong relationships with our patients and patient organisations.

You will have experience of working with focused groups of individuals and be the interface between our business and our patients.


Regional activity receiving directions and instructions from the Patient Partnership Lead and working cross- functionally with other Patient Partnership team members, Brand teams, Medical Affairs, Corporate Affairs and other internal stakeholders.

Job Purpose:

Lead Patient Partnership activities in support of Kyowa Kirin International (KKI) vision and mission, with a primary focus on patient engagement, advocacy, policy, education and patient organisations capability building for a key asset in the Rare Disease Business Unit (RDBU) of KKI.


  • Map and Identify opportunities to work with patient advocates, NGOs, policy makers, academics, and other relevant stakeholders to collect patient’s perspective
  • Build effective, mutually beneficial, long term relationships between patients/patient organisations and KKI in a compliant manner
  • Co-construct with Patient Organisations, policy, advocacy and educational programs in line with the Franchise strategic imperatives and based on patient’s/caregiver’s behaviours, experience, needs, and preferences
  • Provide support for patient community capacity-building, including digital assets, in order to strengthen their position to advocate for their rights in wider health care systems
  • Lead interactions with patient representatives internally and supports external engagement in close partnership with Medical Affairs
  • Lead patient engagement across the drug lifecycle from product launch preparation to loss of exclusivity in the therapeutic area of interest and ensure that the voices of the patient community are integrated into wider product strategy and throughout the organisation
  • Contribute to market research and other real-world research activities to generate patient insights in an innovative manner
  • In alignment with Medical Affairs and Corporate Affairs, develop lay-public communications with information related to KKI’s activities such as communication of results of pivotal studies
  • Work with affiliate Public Affairs teams to ensure regional programmes meet local needs and local teams have the support to achieve their objectives, ensuring close collaboration on programmes and inputting/co-creating where possible
  • Internally, in close cooperation with Corporate Affairs contribute to the education of KKI employees
  • Externally, contribute to build the reputation of KKI as a trustworthy, leading scientific innovator and an authentic and responsible partner to the Rare Disease patient and caregivers community
  • Monitor and analyse the external environment across Europe and other geographies as may be appropriate to track policy trends, spot risks and opportunities for the business


  • University degree in medical field, nursing or biology, health policy, public health, psychology
  • Experience in policy-advocacy, lobbying and communications within a patient group, agency or in-house
  • Proven experience working across health systems, with cross-border patient and healthcare professional associations, in-country patient advocacy groups and healthcare professional bodies, policy and political audiences
  • Demonstrate a deep understanding of European health policy, rare disease and pharmaceutical industry environment, and the levers for influencing policy change
  • Ability to manage consultants/agencies and work in a cross matrix organisation to deliver meaningful programmes that are flawlessly executed, demonstrating impact and delivering value for money
  • Competency, experience and knowledge to effectively collaborate with key internal stakeholders to influence the direction of regional Franchise strategies with an “outside-in” patient perspective
  • Reliable personal networks in the rare disease space is a plus
  • Experience with big data, artificial intelligence applied to healthcare, programming is a plus
  • Kyowa Kirin Core Competencies: Empathy, Team-oriented, Results Oriented, Sense of Urgency and Flawless in Execution.


In return for your talent, we will provide support through smart working, adopting best practice, deploying the latest technology and ongoing personal development. Plus:

  • Competitive salary
  • Bonus

To meet the expectations of our patients and to truly deliver on our Commitment to Life, we are continually looking for people who embrace this spirit. We are committed to providing a culture that offers both inspiration and reward – in terms of compensation and in work satisfaction. And in turn, we want people who’ll bring their unique ideas and diverse approaches, while also aligning to our ultimate goal of making people smile. If this sounds like a company that aligns with your values, we’d love for you to join us in our efforts.


Kyowa Kirin International is an equal opportunities employer.

EMEA Patient Advocacy Manager (Patient Partnership)

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